I was diagnosed with PPPD last April at the Mayo Clinic in Rochester, Minnesota. Although it took me a full year (agonizing wait!!) to get an appointment, getting the diagnosis was worth it. My recommendation is to do as much research as you can on your own. If you suspect you have PPPD, find a doctor who is familiar with it and preferably has some training and experience with it. If you can't find help (which I couldn't) get on the list at Mayo Rochester. The team of doctors there are the premier researchers in the world on PPPD, and helped identify and name the condition. They're the best there is.
More on Mayo to come.
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