Brain Fog?

There's a lot out there about brain fog. It seems to go along with several chronic conditions, including vestibular disorders like PPPD. My experience has been a little different and I'm hoping by sharing it I might find others who have had a similar experience.

I have never felt "foggy" in conjunction with the PPPD. I can think just fine. My problem since the PPPD began has been that thinking makes me tired. Still does. And I don't know what to do about it.

© 2005 paukrus, Flickr | CC-BY-SA | via Wylio

As part of my appeal process for my disability insurance, I underwent a neuropsychological exam. If you are experiencing brain fog, you might be interested to have this done. It measures whether or not you are suffering from any cognitive difficulties as a result of your condition. It isn't easy. It's an 8 hour exam which for me took almost 15 hours over 2 days. It was grueling and needless to say, exhausting. But I wanted to know.

As it turned out, my memory and other brain functions were mostly fine. It showed some impairment of executive function. Oddly, there was no mention in the report about how long it took me to complete the tests, how often I had to take breaks or how many hundreds of times I yawned or put my head down. But actually I was glad my brain was working right for the most part. So why do I get so tired from thinking?

Since I am unable to work, fortunately I don't HAVE to think most of the time. There are occasions when I have to, like trying to select Medicare plans, prescription plans, etc. That was a treat! But it does hold me back. For example, I love puzzles and have several puzzle books, but I have stopped doing them because I noticed that I could hardly stay awake after doing one. Even spending much time on Twitter or my Facebook groups wears me out.

Anybody else out there? Has this happened to you? Because I really want to know. How do I make this better? I am feeling better physically now and am able to do more. I am seeing my grandkids more and am able to do some crafts. We even go out to lunch sometimes. But thinking still makes me tired.

I would love to hear from you. And as always, if you like this post, please share it using the buttons below.

Backpedaling

So yeah, I guess I got a little overconfident when I posted about Beating the Fatigue. It's definitely not beaten, and I am confounded and frustrated by it. I did have initial success with the combination of exercise and meditation (which I continue), but I definitely reached a plateau. And I still get setbacks. If I do too much OR if I have a lot of stress, it's like landing on the "Go Back 4 Spaces" block. Or 7 spaces or 10. Then I have to start all over building up my stamina.

I can't figure it out. Why am I still so tired? Have any of you PPPDers out there experienced this? If so, PLEASE leave a comment. I would love to compare notes with you!

One web site I read mentioned that PPPD may be a component of Chronic Fatigue Syndrome. If anyone has any info about that, I would LOVE to hear it. Too tired to write more.  Later.

Beating the Fatigue Part Two - Meditation

As I mentioned in Part One, I discovered the combination of exercise and meditation by researching brain trauma recovery after I began thinking of my brain as being damaged. I believe that it was damaged by severe prolonged stress, a topic I will write about soon. At any rate, the combination of exercise and meditation is working really well for me. Again, I'll give my inexpert non-medical opinion as to why it helps.

© 2007 impaulsive photography, Flickr | CC-BY | via Wylio

First, meditation teaches you the value of deep breathing. It's very calming, which is a benefit, but in my opinion, the real value is that deep breathing in combination with exercise helps get oxygen to to the brain, allowing it to create new brain cells and repair damaged tissue. Secondly, we've talked about how migraine and PPPD make the.brain extra sensitive to external stimuli. Meditation teaches you to disregard the stimuli, and with me, it seems to be happening even sub-consciously. As the brain gets stronger and calmer, it is better able to defend itself from over stimulation.

I have also found that guided imagery works really well during meditation. I picture my brain healing, growing new brain cells, creating new synapses. And I picture myself breathing in healing oxygen and breathing out toxins or any unwanted symptoms. I found some really helpful guided meditation and imagery tracks on www.healthjourneys.com. The one on Traumatic Brain Injury works well for me, but they have tons to choose from and you can buy them online and download them straight to your mobile device.

If you just want to get started with meditation, Calm.com (or use the Calm app) has lots of excellent guided meditation exercises for free. There's also soothing music you can use for meditation on your own. I also use the calming music sometimes when I practice my Tai Chi.

You know, I have to wonder if I had started meditation while I was going through the extraordinary stress at my workplace if I might have avoided this whole journey. But regardless, I am finding it invaluable now. I meditate about 25 minutes a day, but it doesn't have to be that much. I think doing it every day is more important than the amount of time you spend. I'd say if you don't have 25 minutes, try for 10.

I'd love to hear from you if you have any questions or comments. And if you like any of these articles, please share them using the buttons below.

Beating the migraines - What worked for me

So first I want to say that migraines can play an important role in PPPD. The migraine brain is more susceptible to developing PPPD in the first place. Migraines also interfere with the brain's vestibular functions making balance more difficult, and additionally, the migraine brain is more sensitive to stimuli, which is a huge factor in PPPD.

For me, the PPPD exacerbated the migraines and vice versa, and both caused an unusual amount of fatigue. They all sort of played off one another to really mess up my life.

© 2009 keith ellwood, Flickr | CC-BY | via Wylio

I, like many of you took a triptan medication (Relpax) for migraine relief. They work great if you only have occasional migraines. But more than that and you can be in real trouble, because they cause rebound migraines. In my case, I ended up taking a Relpax pretty much every day, which meant daily migraines, fatigue and a lot of misery. So I knew I had to stop the cycle.

There are infusion centers available that hook you up to an IV for 8 hours a day for 5 days to help you  break the cycle, but that didn't sound good to me. After doing some research, I decided to quit cold turkey. I knew I would have a bad withdrawal migraine, and the research told me I could expect it to last 4 days. I asked my doctor for a prescription for anti-nausea suppositories in case I started throwing up and couldn't stop. But that didn't end up being a problem.

My withdrawal headache lasted 3 days and the first night was by far the worst. So I knew I could make it. When it was over, I knew I never wanted to take tripans again. I just didn't want to get back on that train. And I haven't. I now get about one migraine a week, and I don't take anything. They only last 1 day each, unlike the 3 to 5 days they used to last in the pre-Imitrex days. I know each time that the pain will go away, and I can make it. And I am so much happier being medication free.

Kicking the Relpax (and also my migraine preventive, Topomax) made a huge difference in the way I feel. I am much less tired and I feel so much better. I heartily recommend it if you are anything like me.

Next time, how exercise has helped my PPPD.

I'm Baaack!

Sorry I haven't posted in a while. It turned out that starting this blog was taking too much out of me, so I had to step back for a while. Six months later, I am MUCH better, I'm happy to say. So I'm going to try to continue posting everything I think might be helpful to other sufferers of PPPD or chronic dizziness.

© 2007 Todd Baker, Flickr | CC-BY | via Wylio

When last I posted back in January, I had already overcome a lot of the dizziness through vestibular rehabilitation therapy, which I will explain in an upcoming post. My primary problem then was the crippling fatigue. I just could not function normally. It was complicated by my chronic migraines, which actually play a role in PPPD. Now, six months later, I am significantly improved on all fronts. I accomplished this by the following:

1. I kicked the triptans (migraine treatment medication which actually contributes to chronic migraine)
2. I weaned myself off of the Topomax (migraine preventive) which was causing lethargy.
3. Regular exercise - walking 30 minutes a day (I worked up to this) and 30 minutes of Tai Chi (really good for balance and fitness).
4. Meditation - 30 minutes a day

More detail in this post. But this combination worked miracles for me. 

Also, if you have any questions about anything on this blog, please leave a comment and I will get right back with you. More to come.