Thursday, October 11, 2018

Backpedaling

So yeah, I guess I got a little overconfident when I posted about Beating the Fatigue. It's definitely not beaten, and I am confounded and frustrated by it. I did have initial success with the combination of exercise and meditation (which I continue), but I definitely reached a plateau. And I still get setbacks. If I do too much OR if I have a lot of stress, it's like landing on the "Go Back 4 Spaces" block. Or 7 spaces or 10. Then I have to start all over building up my stamina.

I can't figure it out. Why am I still so tired? Have any of you PPPDers out there experienced this? If so, PLEASE leave a comment. I would love to compare notes with you!

One web site I read mentioned that PPPD may be a component of Chronic Fatigue Syndrome. If anyone has any info about that, I would LOVE to hear it. Too tired to write more.  Later.

Tuesday, October 9, 2018

See you on Facebook?


Hey Guys,

First, a giant apology to those of you  who left comments I didn't respond to. I was relying on Google to notify me of those comments, and that was a big fail. It didn't. I've been on hiatus from all social media for a while, but I'm back now with lots to
tell. So I hope you hang in there with me.

facebook from Flickr via Wylio
© 2018 Book Catalog, Flickr | CC-BY | via Wylio
Second order of business, we need a better discussion forum. I am thrilled that my blog has reached other sufferers of PPPD. But this blog is not the best way for us to all share. I think the Facebook group is more efficient. There is a FB group called PPPD and Life. It has just recently become a little more active, and if we all join it and
promote it, I think it can benefit us all. I know that I learned a lot from the FB groups
I joined about Aimovig, the migraine preventive I'm on. (I recommend those too.) I think the word is getting out about PPPD, which is tremendous. And we have so much to learn from each other.

So join the group, OK? And thank you so much for your comments!! See you on FB.

Click to join PPPD and Life